Retinitis Pigmentosa (RP)

Celebre Family Raises Over $13,000 for the FFB

November 13th, 2018 by FFB Canada

On Saturday, October 20, 2018, family and friends of the Celebre’s came together in support of one very special little boy. Nicholas Celebre was born with Usher syndrome, a condition that causes deaf-blindness and often balance issues. Born profoundly deaf, he was fortunate enough to get cochlear implants when he was 12 months old. He also…

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“Donors give us, and more importantly our daughter, hope.”

November 13th, 2018 by FFB Canada

Guest-written by Deborah Scott. Our daughter, Olivia was 5 years old when she was diagnosed with a blinding eye disease called retinitis pigmentosa (RP). It was difficult for us to comprehend what that diagnosis really meant. As a parent, you never get over the impact of learning that there is so much more to vision…

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“I want to see my children’s faces.”

November 1st, 2018 by Guest Contributor

Story guest-authored by Julia Bonnett. I knew I was losing my sight. During college, I was diagnosed with retinitis pigmentosa (RP), a disease that progressively narrows my field of vision and leads to permanent blindness. But it was happening so slowly, I mostly put it out of my mind. I love music, especially opera and…

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Help Canadians Benefit from Stem-Cell Therapies – Sign the Petition

October 23rd, 2018 by FFB Canada

Since 2001, our friends at the Stem Cell Network (SCN) have been transforming stem cell research, bringing it closer to the clinic and marketplace. As the only national network of regenerative medicine researchers, SCN has supported 170 world-class research groups across Canada and provided specialized training for 2,500 young investigators who represent the future of science,…

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Meet the 2019 Co-chairs for Young Leaders

September 28th, 2018 by FFB Canada

Launched in 2015 by the Foundation Fighting Blindness, the National Young Leaders Program saw a lot of growth in 2018. Designed to provide Canadian youth living with vision loss and blindness with mentorship and career-building opportunities, the Program is oriented around an in-person Summit—you can read more about this year’s Summit HERE—and is set to…

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Announcing the FFB’s Vision Care Pathways

September 27th, 2018 by FFB Canada

Along with the brain, the eye is one of the human body’s most intricate components, an elaborate collection of parts working in tandem to do one thing: gather external light and focus it on a small area of tissue at the back of the eye. Cells housed in the tissue absorb light particles and transmit…

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Inaugural Recipient of the Restore Vision 20/20 Award Announced!

September 12th, 2018 by Dr. Mary Sunderland

There is no doubt that funding vision research is the surest path to developing new sight-saving treatments – just ask our Scientific Advisory Board. September 5, 2018 was a very special day for all of us at the Foundation Fighting Blindness (FFB): we hosted our annual Scientific Advisory Board (SAB) meeting, which brings together world-renowned…

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10 Years of Cycle for Sight

July 10th, 2018 by FFB Canada

In 2009, Dave Sweeny, Michael Ovens, Erin George, and Martin de Sousa came together to develop a new way to raise funds in the fight against blindness. Their vision became a reality when, along with 45 other riders, they hit the road on a rainy day in Toronto for the first Cycle for Sight. That…

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The Talking Eye: Understanding the Retina as a Communications System

June 12th, 2018 by Dr. Chad Andrews

Like any part of the human body, the eye only functions when its various parts communicate effectively—when they “talk” to one another, in other words. In fact, the importance of communication is heightened in the body’s more complex components, and the eye is certainly one of these: we know that vision is the result of…

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