Posts By: Guest Contributor

“I want to see my children’s faces.”

November 1st, 2018 by Guest Contributor

Story guest-authored by Julia Bonnett. I knew I was losing my sight. During college, I was diagnosed with retinitis pigmentosa (RP), a disease that progressively narrows my field of vision and leads to permanent blindness. But it was happening so slowly, I mostly put it out of my mind. I love music, especially opera and…

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What Will the Future be Like for My Son?

July 3rd, 2018 by Guest Contributor

Guest post from Steve’s mom, Catherine Kirugi Like most kids his age, my 9-year old son Steve, asks a lot of questions. But one of them always breaks my heart. “Mom, why am I blind?” When Steve was just a few months old, he was diagnosed with the eye disease Leber congenital amaurosis (LCA). My…

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Protecting Patients by Encouraging Oversight: Can Civil Lawsuits Help?

April 3rd, 2018 by Guest Contributor

Stem cell treatments have been advertised as miracle cures for many illnesses, including vision loss. But, not all advertised “treatments” have evidence that they will work, and some have proven dangerous. Last year, three patients with age-related macular degeneration (AMD) were blinded after paying for stem cell injections. As a result, several patients, including those…

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