The Day Everything Changed: William’s Life With Leber Congenital Amaurosis

March 7th, 2017 by FFB Canada

As a first-time mom, Iris Clarin had been to the doctor many times with her son, William. Whether it was for stubborn coughs or eye exams, these visits and tests almost became routine – until that day in 2009.

William was three years old when both Iris and her husband noticed that his eyes focused on lights, often looking right past them. Doctors assured them that William’s eyes were still developing and he would eventually outgrow it.

But as months went by, William’s problems worsened. His eyes began to twitch and he constantly bumped into things. His parents drove him three hours to Edmonton for a special test. It was then that Iris and her husband, George, learned that William had severe and permanent vision loss.

He was diagnosed with Leber Congenital Amaurosis (LCA), a progressive eye disease that leads to complete blindness, for which there is no cure – yet.

William is ten years old now and, like many boys his age, loves cars and is excited about driving when he gets older. As of now, that dream is out of reach – but it doesn’t have to be!

You have the power to change lives by supporting ground-breaking research into LCA and other blinding retinal eye diseases. Families like the Clarins can be found all across the country. Stand with them and support research with a donation right now.

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