Patient Registry

The Foundation Fighting Blindness Patient Registry is a secure clinical database that connects people living with retinal eye diseases to emerging clinical trials and research.

Enrolment in the Patient Registry provides people living with retinal eye diseases opportunities to participate directly in groundbreaking new studies, as top Canadian researchers draw directly from this database for trial participants.

People with retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis and all other inherited forms of retinal degenerative disease are welcome to participate.

Learn how you can enrol in the Patient Registry

All fields marked with an asterisk (*) are required

Basic Information



Mailing Address




Medical Information


Outreach