Patient Registry

The Patient Registry is for CANADIAN RESIDENTS ONLY.

The Foundation Fighting Blindness Patient Registry is a secure clinical database that connects people living with retinal eye diseases to emerging clinical trials and research. The Foundation Fighting Blindness will connect you to the appropriate enrolment site.

Enrolment in the Patient Registry provides people living with retinal eye diseases opportunities to participate directly in groundbreaking new studies, as top Canadian researchers draw directly from this database for trial participants.

People with retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis and all other inherited forms of retinal degenerative disease are welcome to participate.

Learn more by reading our article: Everything You Need to Know About FFB’s Patient Registry

Watch Dr. Elise Héon speak about the importance of genetic diagnosis for patients with inherited retinal diseases.

For more information about the Patient Registry, please fill out the form below.
The Patient Registry is for CANADIAN RESIDENTS ONLY.

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