News

After 20 Years of Stargardts & Self Discovery

February 7th, 2014 by FFB Canada

Written and submitted by Jennifer Yesterday was my 30th birthday. The importance is not so much in the number but where my mind is at. Over the 20+ years having Stargardts my life has been a complete emotional roller coaster.  Growing up hating the world I was born into, to learning to forgive and accept who…

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Testing the Safety of Induced Stem Cell Therapies

February 5th, 2014 by FFB Canada

To restore sight to a damaged retina, one promising strategy is to replace the damaged cells with new ones. One way to do this is to start with stem cells and transform them to create new retinal cells. In the last few years, scientists have demonstrated that that retinal cell transplants are possible in mice,…

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All My Parts

February 2nd, 2014 by FFB Canada

Written and submitted by Laura In 2007 I remember sitting outside Camosun College in Victoria BC and receiving a phone call from my ophthalmologist’s office telling me that I was diagnosed with Retinitis Pigmentosa and that I needed to come in to further discuss this with my doctor. I have always said that it seemed like…

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“Mom, I’m Not A Personal Tragedy”

January 25th, 2014 by FFB Canada

Written and submitted by Anonymous Talking to your parents about your vision loss Looking back, I don’t think a day went by without me knowing how much I was loved by my parents (may they rest in peace). Still, they were my parents, and I know I should never underestimate how hard it must have been…

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Where IS That Thing?

January 20th, 2014 by FFB Canada

Written and submitted by Marilyn Turner. Strategies for finding dropped and misplaced objects It happens to us all…coins dropped in front of the vending machine, keys dropped in the grass beside the door, toothpaste knocked from the shelf and bouncing across the bathroom floor.  With limited or no vision, retrieving dropped objects is a challenge….

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Message To My Younger Self: Ryan

January 20th, 2014 by FFB Canada

1. Can you share with us what retinal eye disease you have and when you were diagnosed? I have a form of Retinitis Pigmentosa called Choroideremia and was diagnosed when I was approximately 5 years old.  My parents noticed me staring at lights and investigated right away. 2. Did vision loss have any impact on…

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Message To My Younger Self: Martin

January 19th, 2014 by FFB Canada

1. Can you share with us what retinal eye disease you have and when you were diagnosed? I was initially born with a moderate to severe hearing loss. At age 16 I began to lose my ability to see at night. After a severe cycling accident, I was diagnosed with Retinitis Pigmentosa. The combination of…

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Youth Space Spotlight: Alisha

January 18th, 2014 by FFB Canada

1. Can you share with us what retinal eye disease you have and when you were diagnosed? Stargardts at age 21 2. Did vision loss have any impact on your education choices? At the time I was already pursuing nutrition and I was able to continue with that. 3. What do you do for a…

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Youth Space Spotlight: Stephen

January 17th, 2014 by FFB Canada

1. Can you share with us what retinal eye disease you have and when you were diagnosed? I suffer from Retinitis Pigmentosa. I have roughly five degrees of peripheral vision but my central vision remains in good shape (I can read without relying on any visual aids). I was diagnosed when I was in Grade…

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First Gene Therapy Results for Choroideremia Suggest Cautious Optimism

January 16th, 2014 by FFB Canada

The first human trial of a gene therapy for choroideremia has announced preliminary results on six people; two of these patients have experienced significant improvements in vision. The findings were published in the British journal, The Lancet. The novel gene treatment was developed by Dr. Robert MacLaren, at Oxford University, in collaboration with Dr. Miguel…

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