Must-Read Resources

Stem cell therapy for vision loss: Will it work for you?

March 23rd, 2018 by Dr. Mary Sunderland

In 2015, after a flurry of stem cell developments were profiled in the media, I wrote this story to help answer one of the most popular questions that we receive about stem cell therapies for blindness and sight loss: will they work for you and for your eye disease? On March 19, 2018, the results…

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Everything You Need to Know About FFB Canada’s Patient Registry

February 6th, 2018 by FFB Canada

Fill out the online form on our Patient Registry page to learn more about how you can enroll. Click here to download a printable version of this article/fact sheet: PDF/Word. The Patient Registry is a secure medical database that was designed to connect people living with inherited retinal diseases (IRDs) to clinical trials, to improve…

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Five Most Frequently-Asked Vision Science Questions

July 31st, 2017 by FFB Canada

Summer brings sunshine, but also more time for thinking and reading.  At the FFB, we took this opportunity to answer some of your most frequently asked questions about vision research and emerging treatments. We hope you enjoy this summer reading material– keep sending in your questions! 1) When can I expect a cure for my…

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Stem Cell Tourism: How to Protect Your Eyes from Dangerous Charlatans

March 7th, 2017 by FFB Canada

As the race to restore sight speeds up, there are some unfortunate side effects, including direct-to-consumer marketing by dangerous, unapproved stem cell clinics. Experts estimate that there are approximately 600 stem cell businesses in the United States that are operating as “clinics” that offer untested and unproven “treatments” to patients who are desperate to try…

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Everything You Need To Know About Clinical Trials

October 11th, 2016 by FFB Canada

What is a clinical trial? Clinical trials are experiments that test whether a new intervention, such as a drug or surgery, will work in people. The main goal of clinical trials is to determine if the new intervention is safe and effective. Why use the word intervention instead of treatment? When talking about clinical trials,…

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Everything You Need To Know About The Bionic Eye

May 18th, 2016 by FFB Canada

Click here to download a printable version this article/fact sheet: PDF/Word. What is a retinal prosthesis? A retinal prosthesis is a non-living, electronic substitute for the retina. Popular and brand names for retinal prostheses are the Bionic Eye and the Argus II. The aim is to restore vision to someone blinded by retinal eye disease….

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Everything You Need to Know About Genetic Testing for Inherited Retinal Diseases

May 4th, 2016 by FFB Canada

Click here to download a printable version this article/fact sheet: PDF/Word. Background Did you know that two people who are living with the “same” diagnosis, such as retinitis pigmentosa (RP), may have different mutations in the same gene or even different mutations in different genes? In many cases, the location of these genes and mutations…

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