Retinitis pigmentosa (RP) is a genetic condition that slowly damages the retina, causing a narrowing of peripheral vision that progresses throughout a person’s life. It affects approximately one in 3500 Canadians.
• Difficulty seeing at night or in dark surroundings. This is called nyctalopia or night blindness.
• Loss of peripheral vision; commonly called tunnel vision. This can occur quite early in the progression of the disease.
• Typically diagnosed during childhood or adolescence, but some people may not notice symptoms until adulthood.
As of today, there are no treatments. The FFB funds leading research into RP, and encourages people living with this disease to enrol in the FFB Patient Registry, which will keep you updated on emerging clinical trials and opportunities to participate.