Category: Retinitis Pigmentosa (RP)

“Adapt to What You Have and Never Give Up.”

February 6th, 2018 by FFB Canada

Being young and being philanthropic don’t often go together, and for good reasons. Young people, especially those between 17 and 30, face challenges that are both daunting and unprecedented: tuition fees are inflated, job markets are increasingly constrained, and home ownership is often beyond reach. These challenges are heightened for those living with vision loss…

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Everything You Need to Know About FFB Canada’s Patient Registry

February 6th, 2018 by FFB Canada

Fill out the online form on our Patient Registry page to learn more about how you can enroll. Click here to download a printable version of this article/fact sheet: PDF/Word. The Patient Registry is a secure medical database that was designed to connect people living with inherited retinal diseases (IRDs) to clinical trials, to improve…

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First gene therapy for a blinding eye disease receives FDA approval

December 19th, 2017 by Dr. Mary Sunderland

Today we are celebrating the FDA’s pathbreaking approval of Luxturna. We have been following the development of Luxturna closely. Today’s landmark FDA approval makes Luxturna the first gene therapy approved in the US that targets a disease caused by mutations in a specific gene. The next steps involve determining the price for Luxturna, which poses…

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Give the Gift of Sight

November 27th, 2017 by FFB Canada

When my son Bennett was born, he was a beautiful, healthy baby boy. My husband and I couldn’t have been happier. But 10 weeks later, we got shocking news that knocked us off our feet – our little boy had a rare eye disease called juvenile retinoschisis and there was no cure. What we learned…

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Clinician-Scientist Emerging Leader Award: Dr. Brian Ballios

November 1st, 2017 by FFB Canada

UPDATE: With Dr. Brian Ballios launching our Let’s Bring the Fight campaign, we wanted to re-publish this post about him being our inaugural recipient of the Foundation Fighting Blindness Clinician-Scientist Emerging Leader Award. Dr. Brian Ballios has restored vision in mice, but he is not stopping there. He is on a mission to develop stem…

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Top 10 Science-y Summer Tips

June 29th, 2017 by FFB Canada

So far this year, the pace of vision research has been sizzling! To celebrate the arrival of sizzling weather, we asked the Foundation Fighting Blindness (FFB) staff to share their favourite FFB science stories from the archives. Kick back, relax, and enjoy our top 10 list of vision health tips, science stories, and sight-saving science…

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Clinical Trial Updates: Gene Therapy

June 6th, 2017 by FFB Canada

Many experts agree that gene replacement therapy is a novel approach to treating inherited degenerative retinal diseases, especially when the disease is caused by a single gene defect (or mutation). Gene replacement therapies are sometimes described as “gene addition” or “gene augmentation” therapies because the treatment strategy involves replacing a damaged gene with a new,…

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Relay Rowing Team Races to Canada Day Celebrations

May 8th, 2017 by FFB Canada

Diagnosed with retinitis pigmentosa at 15, Jean-Christophe learned sculling, an accessible low-impact sport that would keep him active as his vision deteriorated into adulthood. Despite his diagnosis, Jean-Christophe takes buses and walks the streets of Toronto where he now lives and serves as a Director of the Ontario Adventure Rowing Association. Jean-Christophe is an unrelenting…

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Let’s Talk Research With Dr. Mary Sunderland [April 2017 Facebook Live](VIDEO)

April 12th, 2017 by FFB Canada

On the first Tuesday of every month, the Foundation Fighting Blindness sends out our e-newsletter featuring the latest and most exciting research breakthroughs. Soon after each e-newsletter, our very own Director of Research and Education, Dr. Mary Sunderland, takes to our Facebook page to do a live broadcast discussion of the articles featured in the…

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