Category: Research

Protecting Patients by Encouraging Oversight: Can Civil Lawsuits Help?

April 3rd, 2018 by Guest Contributor

Stem cell treatments have been advertised as miracle cures for many illnesses, including vision loss. But, not all advertised “treatments” have evidence that they will work, and some have proven dangerous. Last year, three patients with age-related macular degeneration (AMD) were blinded after paying for stem cell injections. As a result, several patients, including those…

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The Difference Between Gene Therapy and Stem Cell Therapy [Facebook Live] (Video)

March 28th, 2018 by FFB Canada

Watch our Facebook Live session, from Friday, March 23, where we were joined online by special guest, Dr. Jill Dolgin from the gene therapy company, AGTC. Dr. Mary Sunderland also talked about the difference between gene therapy and stem cell therapy. News stories that Dr. Sunderland references in the above video: Everything You Need to…

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Stem cell therapy for vision loss: Will it work for you?

March 23rd, 2018 by Dr. Mary Sunderland

In 2015, after a flurry of stem cell developments were profiled in the media, I wrote this story to help answer one of the most popular questions that we receive about stem cell therapies for blindness and sight loss: will they work for you and for your eye disease? On March 19, 2018, the results…

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Experimental Stem Cell Treatment for Macular Degeneration Restores Vision

March 21st, 2018 by FFB Canada

Stem cells are making headlines again! This is good news, especially for those living with age-related macular degeneration (AMD), the most common blinding eye disease in people over the age of 50. Macular degeneration accounts for almost 50 percent of all visual impairment in the developed world and affects more than a million Canadians. The…

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Everything You Need to Know About FFB Canada’s Patient Registry

February 6th, 2018 by FFB Canada

Fill out the online form on our Patient Registry page to learn more about how you can enroll. Click here to download a printable version of this article/fact sheet: PDF/Word. The Patient Registry is a secure medical database that was designed to connect people living with inherited retinal diseases (IRDs) to clinical trials, to improve…

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First gene therapy for a blinding eye disease receives FDA approval

December 19th, 2017 by Dr. Mary Sunderland

Today we are celebrating the FDA’s pathbreaking approval of Luxturna. We have been following the development of Luxturna closely. Today’s landmark FDA approval makes Luxturna the first gene therapy approved in the US that targets a disease caused by mutations in a specific gene. The next steps involve determining the price for Luxturna, which poses…

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Survival of the Fittest: Sustaining Cells Through Transplantation

December 18th, 2017 by Dr. Chad Andrews

In many retinal diseases, vision loss occurs when cells that are crucial for vision are damaged or lost. This is the case, for example, in age-related macular degeneration (AMD), retinitis pigmentosa, choroideremia, and Stargardt disease. To reverse vision loss resulting from these and similar diseases, we need to develop and refine our ability to replace…

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