Category: Leber Congenital Amaurosis (LCA)

Everything You Need to Know About FFB Canada’s Patient Registry

February 6th, 2018 by FFB Canada

Fill out the online form on our Patient Registry page to learn more about how you can enroll. Click here to download a printable version of this article/fact sheet: PDF/Word. The Patient Registry is a secure medical database that was designed to connect people living with inherited retinal diseases (IRDs) to clinical trials, to improve…

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First gene therapy for a blinding eye disease receives FDA approval

December 19th, 2017 by Dr. Mary Sunderland

Today we are celebrating the FDA’s pathbreaking approval of Luxturna. We have been following the development of Luxturna closely. Today’s landmark FDA approval makes Luxturna the first gene therapy approved in the US that targets a disease caused by mutations in a specific gene. The next steps involve determining the price for Luxturna, which poses…

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Gene Therapy Improves Vision in Landmark Clinical Trial

July 14th, 2017 by Dr. Mary Sunderland

Yesterday, a landmark publication in The Lancet, a prestigious journal, showed that gene therapy can improve vision in people living with a rare blinding eye disease. The study examined the effects of an experimental gene therapy – voretigene neparvovec – to treat an inherited blinding eye disease caused by mutations in the RPE65 gene. RPE65…

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Top 10 Science-y Summer Tips

June 29th, 2017 by FFB Canada

So far this year, the pace of vision research has been sizzling! To celebrate the arrival of sizzling weather, we asked the Foundation Fighting Blindness (FFB) staff to share their favourite FFB science stories from the archives. Kick back, relax, and enjoy our top 10 list of vision health tips, science stories, and sight-saving science…

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Let’s Talk Gene Therapy Research With Dr. Mary Sunderland & Dr. Chad Andrews (VIDEO)

June 12th, 2017 by FFB Canada

On the first Tuesday of every month, the Foundation Fighting Blindness sends out our e-newsletter featuring the latest and most exciting research breakthroughs. Soon after each e-newsletter, our very own Director of Research and Education, Dr. Mary Sunderland, takes to our Facebook page to do a live broadcast discussion of the articles featured in the…

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4 Big Predictions for Vision Research in 2017

January 10th, 2017 by Dr. Mary Sunderland

Last year was full of remarkable developments in vision science. Important discoveries in stem cell biology filled in key knowledge gaps, while advancements in gene therapy moved optogenetics from the realm of science fiction to reality (check out our top 10 discoveries from 2016). Here are four key developments to look forward to in 2017….

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Surprising Cell Transplantation Discovery Redirects Race to Restore Sight

December 14th, 2016 by FFB Canada

Ten years ago, scientists discovered that they could restore some vision to blind mice by cell transplantation. This watershed moment ushered in a golden era of stem cell research focused on treating blindness. Today, a surprising discovery offers a new explanation about how vision restoration occurs. Previously, scientists thought that stem cell transplantation worked by…

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